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Table 2 Overview and characteristics of existing head and neck cancer (HNC) databases

From: Rotterdam Oncology Documentation (RONCDOC) – a high-quality data warehouse and tissue collection for head and neck cancer

 

(DAHANCA) [26]

NORDCAN [6, 7]

IKNL [24]

NET-QUBIQ [25]

DHNA [28]

HN5000 study [27, 29]

NCDB [17, 18]

SEER [4, 5]

RONCDOC

Country of origin

Denmark

Nordic countries

NL

NL

NL

UK

USA

USA

NL

Database characteristics

 Head and cancer specific

yes

no

no

yes

yes

yes

no

no

yes

 Pro-/retrospective

pro

retro

retro

pro

pro

pro

retro

retro

both

 Hospital (h) or population (p) based

p

p

p

h

p

p

h

p

p

 Consecutive

yes

yes

yes

no

yes

no

no

yes

yes

Tumor characteristics

 Diagnosis/subsite

x

x

x

x

x

x

x

x

x

 TNM classification

x

x

x

x

x

x

x

x

x

 Treatment

x

x

x

x

x

x

x

x

x

Sociodemographic data

 Demographic data

x

x

x

x

x

x

x

x

x

 Education/literacy

 

x

 

x

 

x

x

 

x

 Occupation

 

x

 

x

 

x

  

x

 Income

   

x

 

x

x

 

x

Health and lifestyle

 Co-morbidity

x

  

x

x

x

x

 

x

 Smoking/alcohol

x

 

x

x

x

x

  

x

 Quality of life

x

  

x

x

x

  

x

Follow-up

 Recurrence

x

 

x

x

x

   

x

 Mortality

x

x

x

x

x

x

x

x

x

Biological samples

 Blood sample

x

  

x

 

x

  

x

 Saliva sample

   

x

 

x

   

 Tissue sample

x

  

x

 

x

  

x

  1. UK United Kingdom, USA United States of America, NL The Netherlands
  2. x: variable included in database